Find out how a rare breathing disorder has changed the life of my young son and my family.

Sunday, July 09, 2006




~It's drawing nearer ~

We visited with the representative of Make A Wish today and received our "departure package" which included our itenerary and a backpack full of goodies for Josh. Inside the bag were Walt Disney World books, an airport adventure coloring book (this will be both the kids' first ride on a commercial plane), a disposable camera, colors, sunscreen, Make-A-Wish T-shirts for each of us, and much more.

Today's meeting was also held at Chuck E. Cheese's - which is fast becoming Joshua's favorite place around here. He played games, hugged Chuck E. Cheese and stuffed his face with pizza and soda. It was a good day and we look forward to our *Magical* trip to Orlando.

We still have so much to do in the days ahead to prepare for the trip. Tomorrow, Joshua visits his pulmonologist so she can have one last check on his health. He did have a bit of trouble this morning with sore, tight muscles - which I think has some connection to his getting dehydrated - because once we give him more pedialyte drinks, he seems to feel much better. And if he drinks the pedialyte on a regular basis, he doesn't seem to experience the sore, tight muscle problem at all.

I'm a little concerned with dealing with the dehydration problem and the question of what all medical equipment we are going to lug around to all the Disney parks with us on the trip - but I am sure we'll face those issues ok. Of course the best bet is to ask everyone to keep us in your prayers especially through this trip.

And we will take lots of pictures of our trip so we can post some of them here for everyone to enjoy!

2 Comments:

Anonymous Anonymous said...

Dear Vanessa, I think of you and Joshua so often... Your blog is outstanding and triggers a lot of thinking about the meaning of life...

1:01 PM

 
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1:36 PM

 

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