Find out how a rare breathing disorder has changed the life of my young son and my family.

Thursday, May 04, 2006

Blog from Monday, April 24, 2006

Praise through the Storm

On the way home from taking Josh to school this morning, I was listening to a song on KLOVE called "Praise you in this storm" and it got me to thinking. I live this song almost on a daily basis.

Here are the lyrics:

I was sure by now
That You would have reached down
And wiped our tears away
Stepped in and saved the day
But once again, I say "Amen"
and it's still raining

As the thunder rolls
I barely hear
You whisper through the rain
"I'm with you"
And as Your mercy falls
I raise my hands
and praise the God
Who gives and takes away

Chorus:
I'll praise You in this storm
And I will lift my hands
For You are who You are
No matter where I am
Every tear I've cried
You hold in Your hand
You never left my side
And though my heart is torn
I will praise You in this storm

I remember when
I stumbled in the wind
You heard my cry
You raised me up again
My strength is almost gone
How can I carry on
If I can't find You

As the thunder rolls
I barely hear
You whisper through the rain
"I'm with you"
And as Your mercy falls
I raise my hands
and praise the God
Who gives and takes away

Chorus
I lift my eyes unto the hills
Where does my help come from?
My help comes from the Lord
The Maker of Heaven and Earth

Repeat



Josh is still struggling with symptoms of his disease/illness/syndrome - whatever you want to call it. One week (sometimes more) he'll have trouble with his body temperature, then he'll have times when his secretions are thick or his stoma (where the trach goes in) is sore and red, he struggles with the size of his belly and the last two days, it has been that he wakes up and has wet the bed - throroughly! He just has no control over so much of these things and I know this cannot be easy for him.

Sometimes I just want to cry for him - but you know what - I have never seen him shed a single tear over any of this - with the one exception being when they needed to stick his arm to put contrast solution into him for an MRI.

I know I've shed my share of tears through all of this - with the loss of control or the feeling of control - with his health, with my job(s), with money issues. It is so hard.

But I am so glad that God is still in control and has promised He will be there to see us through this storm.

Keep on praying for us and I'll continue to try and shine for Jesus through this storm!

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