My Son's Rare Medical Condition: August 2006

Find out how a rare breathing disorder has changed the life of my young son and my family.

Thursday, August 03, 2006

Send Josh mail - Please!

We have been working on getting Joshua featured on a couple of Not-For-Profit websites for kids with chronic or life threatening illnesses.

One of the requirements is to have a post office box for mail addressed to the child. (They do not want to post the child's home address for their safety.)

Today, we met that requirement - we turned in the paperwork, etc. and rented a post office box just for Josh to receive mail.

So, now he would love it if someone would mail him something - a post card or letter of some kind.

Come on everyone - let him know you have been reading about him, praying for him, care about him. Here is his new address:

JOSHUA WOOTEN
PO BOX 598
CIBOLO, TX 78108-0598

We are dissappointed to learn that Joshua will now require 24 hour ventilation and need around the clock nursing care. It is also hard to hear that Joshua will not be able to get rid of his trach - even with the diaphragmatic pacemaker we were hoping for - for so long. We will still be needing to travel to Chicago to meet with this new specialist several more times in the future. Our next trip will be in the summer of 2007.

If you would like to help with medical and travel expenses, you may make donations, here. Or you can mail them (or send Joshua a greeting) to: JOSHUA WOOTEN PO BOX 598 CIBOLO, TEXAS 78108-0598

GOD BLESS YOU!

: Name: Vanessa; Location: Cibolo, Texas, United States

I am a Christian wife and mother. My professional background is in television news and journalism. However, I am no longer working in television. Since my son's illness was diagnosed in the fall of 2005, I have been a stay at home mom. I grew up in a Christian home and am trying to raise my family the same way. My church family is also very important to me.

View my complete profile

LO-CHS Article
CCHS Article
My MySpace Page
Or search for your own medical topic here:

Thank you for taking time to read about us. I really believe God has plans to use us in a mighty way. May He bless you and shine through you, too.

The program below sounds wonderful!
If you know of anyone who could benefit from this, the contact person is Linda White and it's on the website (listed below.)

Here's the description:

Often children must travel hundreds of miles from home to receive specialized treatment. KINfolk is there for these children. KINfolk provides a traveling computer for the child. This computer is assigned to go with the child wherever he or she may go during the course of his or her illness. This program provides uninterrupted contact for the child and his or her online support network. Those traveling with the child may also use the computer to keep in touch with home and work, allowing the more time with the child while maintaining employment. Many KINfolk children use the computers to talk to their parents and siblings at home.

My Son's Rare Medical Condition

Thursday, August 03, 2006

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